Keith had his bi-annual appointment with Dr. Wooten today. I wasn’t able to go this time because it was so early in the morning, and getting two babies ready that early is not my idea of a good time! Still, I hate to miss appointments with Dr. Wooten.
This appointment was important. Keith has gone off Mirapex and re-adjusted his other medications. Lately he has been having a very difficult time sleeping, and we’ve noticed a few other physical and cognitive changes as well. There was a lot to discuss, and Doc particularly likes to hear the spouses/caregivers point of view. Sometimes we are able to see things the PWP is unable to see, or give a point of view to yet told. All in all, it turned out well – Dr. Wooten adjusted the medication Keith is on, and put him on Neurontin, a drug approved for nerve pain, and commonly used as an anti-seizure medication. I am a little nervous about the side effects (suicidal thoughts!), but I promised months ago to back off a little, so I will. Well, I’ll try to, anyway.
Dr. Wooten also told Keith that he is a good candidate for DBS, deep brain stimulation. I had always thought it was most helpful to those that have severe tremors, which is mild in Keith, but Wooten said that it works wonders on the symptoms Keith does have, namely rigidity and stiffness, and muscle cramps. Keith has never been a fan of DBS, but after talking to Dr. Wooten about it today, he seems pretty eager to learn more. He is open to the idea, which is taking a big step in the right direction. I have to admit; I am a little excited about the thought of Keith not having all those horrible physical symptoms. Imagine Keith not being in pain, or struggling to put his shoes on, or not having a stooped posture at all times! Even if Keith decides against the surgery, it really is nice to know that we have another option. If things get unbearable for him, he can always play that card. I know, of course, that it is not a cure, but it will help, and when it comes to PD, any and all help is beneficial.
So once again, we have found hope in what seems to be a hopeless disease. Thank you, God!